A young baby born without his skull in Florida recently celebrated his first birthday despite doctors saying he would die within days of birth. Jaxon Emmett Buell was born with a large chunk of his skull missing, due to a condition known as Anencephaly – a malformation that developed while he was in the womb and affects one in about 4,860 babies in the U.S. Defying the odds, the little fighter has earned the nickname ‘Jaxon Strong’ on social media as more than 18,000 people have shared his story.
Of course, I lost it at work so they sent me home and the rest of the day was a blur truly.
Brittany, Jaxon’s mum.
His devout Christian parents Brandon and Brittany found out about the condition in the 17th week of the pregnancy when they discovered they were having a boy. The 30-year-old father said they “knew something was up when the ultrasound technician went towards his head and went very quiet”. Doctors said there could be a number of things wrong with the baby, from Down syndrome to Spina bifida. They were advised to terminate at 23 weeks, but that was against the young Christian couple’s beliefs.
Who are we to decide? We were given a child, we are given a chance and we have to be his voice.
Jaxon’s father Brandon.